We're real people who pick up the phone. Reach out — whether you just received a diagnosis or have been part of our community for years.
We typically respond within 1–2 business days. For urgent matters, please call us directly.
We'll never share your information with third parties.
Message & data rates may apply. Reply STOP at any time to unsubscribe. We'll never share your number. Typically 2–4 messages per month.
Beyond our main coordinators, we offer targeted support for specific communities within the 5p- family.
Connect with a trained parent volunteer who has walked a similar path in your state.
Coordinadores disponibles en español para familias hispanohablantes.
A community for siblings navigating life alongside a brother or sister with 5p-.
Grandparent coordinators in PA, KY, and CA — expanding nationwide.
You don't have to figure this out alone. Call us, email us, or reach out on Facebook — we'll connect you with the right people right away.