Real stories from the 5p- community, advocacy wins, research updates, and the everyday moments that matter most.
Shannon Campbell, mother of a 16-year-old with Cri du Chat Syndrome, advocates for accessible changing facilities in public spaces.
The McDaniel family successfully lobbied Washington State Governor Jay Inslee to proclaim May 5 as Cri du Chat Syndrome Day.
Join us July 23–26 in San Antonio for our annual gathering. Medical presentations, family workshops, and hundreds of families who get it.
Over 100 families contributed to the most comprehensive caregiver resource ever published by the Five P- Society. Free to download.
Thanks to donor generosity, the Five P- Society's Sibling College Scholarship Fund has supported more families than ever this year.
May 13–31, participate from anywhere. Run, walk, roll — all paces and abilities welcome. Registrants receive a commemorative shirt.
A powerful first-person documentary following daily life with Cri du Chat Syndrome — milestones, challenges, and the remarkable spirit of the community.
After son Liam's diagnosis, Megan and JC Leston founded the Cri du Chat Research Foundation — now a growing movement funding new drug screenings and gene therapy research.
Governor Whitmer's official May 5, 2025 proclamation recognizes Cri du Chat Awareness Day, shining a statewide spotlight on the 5p- community.
A clear, accessible explainer on the genetics, symptoms, and science behind 5p- Syndrome — ideal for sharing with newly diagnosed families or educators.
Families from around the world come together in this community-produced awareness video celebrating the strength, love, and resilience of the 5p- community.
We'd love to feature your family's journey, advocacy win, or milestone moment. Your story could be exactly what another newly diagnosed family needs to read.
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