You're not
alone in this.

The Five P- Society connects families, caregivers, and professionals touched by 5p- Syndrome (Cri du Chat) — with community, resources, and hope at every step of the journey.

New to this
I just received a diagnosis
Clear next steps, what to expect, and families who've been right where you are.
Part of the community
I'm already a member
Access resources, events, peer connections, and your member dashboard.
Curious & learning
I want to understand 5p-
Explore the syndrome, meet real families, and learn how you can help.
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50–60
US diagnoses per year
40+
Years of support
1K+
Families in our community
5 US
Regional coordinators
100+
Family stories in our guide
Where to start

Find your path

Whether you just received a diagnosis or have been on this journey for years, we have the right resources for you.

Just Diagnosed

We know this moment is overwhelming. Find clear, compassionate information about 5p- Syndrome, what to expect, and your first steps.

Learn About 5p- →

Current Members

Access the Caregiver's Guide, connect with regional coordinators, find peer support groups, and stay up to date on events.

Access Resources →

Educators & Professionals

Find clinical overviews, fact sheets, first-responder cards, and tools for working with individuals who have 5p- Syndrome.

Professional Resources →
What is 5p- Syndrome?

A rare chromosomal condition on a wide spectrum

5p- Syndrome — also known as Cri du Chat or "Cat Cry" Syndrome — results from a deletion of genetic material on chromosome 5. About 50–60 children are diagnosed in the US each year.

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Characterized at birth by a distinctive high-pitched cry, low birth weight, and low muscle tone

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Results in a wide spectrum of intellectual and developmental abilities — no two individuals are alike

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Typical life expectancy with the right early intervention and ongoing support

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Research from the 1980s showed children raised in families with early intervention far exceed early prognoses

Full Syndrome Overview Download Resources
A child with 5p- Syndrome
What's happening

Upcoming Events

View All Events
May
13

Virtual 5K for 5p-

Run, walk, or roll — participate from anywhere in the world and show your support for the 5p- community.

May 13–31, 2026
Virtual
All fitness levels
Register
Jul
23

2026 Five P- Society Annual Conference

Three days of sessions, family connection, medical presentations, and community. Join hundreds of families in San Antonio, TX.

July 23–26, 2026
San Antonio, TX
Annual gathering
Learn More
Jul
11

Louisville Regional Family Gathering

A casual outdoor afternoon for families in the Louisville area — lunch provided, activities for kids and teens, and open time to connect.

July 11, 2026 · 11am–3pm CDT
Louisville, KY
Regional gathering
RSVP
Aug
16

Western Canada Regional Gathering

Families from BC, Alberta, and Saskatchewan are invited to this relaxed meetup in Calgary — bilingual welcome, EN/FR resources available.

August 16, 2026 · 12pm–4pm MDT
Calgary, AB
Regional gathering
RSVP
Community voices

Families who found their people

"

Knowing that I have a community of members to turn to for information, support, and friendship is amazing. I no longer feel alone in this journey.

SM
Sarah M.
Mother of a child with 5p-
"

The conference changed everything for our family. Meeting other families and seeing older children thriving gave us so much hope for our daughter's future.

DK
David K.
Father, 5p- community member
"

As a pediatric neurologist, the resources the Five P- Society provides my patients' families are invaluable. It's the first place I send newly diagnosed families.

Dr
Dr. Anita R.
Pediatric Neurologist
Tools & materials

Resources for every need

Browse All Resources

5p- Caregiver's Guide 2023

Compiled from 100+ family experiences. A must-read for new and experienced caregivers.

First Responder Card

Downloadable PDF to share with emergency services, teachers, and caregivers.

"Cry of the Cat" Documentary

A four-year follow-up with families navigating 5p- Syndrome, covering therapy, growth, and hope.

Government Benefits Guide

SSI, Medicaid waivers, ABLE Act accounts — understand what your family may qualify for.

Support Groups

Online communities, sibling groups, grandparent networks, and bereavement support.

Fact Cards for Schools

Foldable reference cards for educators and school support staff.
Private community

Join the conversation happening right now

Our private Facebook group is where the real conversations happen — late-night questions, therapy wins, school frustrations, product recommendations, and the kind of support only people who truly get it can offer.

Private group — only approved members can see posts
Moderated by Five P- Society volunteers
International members — US, Canada, UK, Australia & more
Join the Group

Membership required. Already a member? Log in for the direct link.

Five P- Society Community
Private group · 2,400+ members
TM
Tina M.
"Just got our daughter's AAC device approved after 8 months of fighting insurance. If anyone needs help writing an appeal letter, I'm happy to share our template."
47 23 comments2 hours ago
RK
Ryan K.
"Our son took his first independent steps today at age 6. Every single person in this group told us to keep going. Thank you."
112 41 comments5 hours ago
LP
Lisa P.
"Anyone else have a kiddo who just LOVES water? Looking for adaptive swim programs in the Pacific Northwest — any recommendations?"
18 14 commentsYesterday
Active right now
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Every family deserves support

Your donation funds resources, conferences, the sibling scholarship, and the coordinators who answer the phone when a family is just getting started.

Donate Today Become a Member

Thank you so much!

Your generosity helps us reach families at their most important moments — thank you for being part of what we do.

Your gift supports family outreach, our annual conference, research connections, and free resources for every family we serve.

Newly Diagnosed
Join the Society
Learn About 5p-