Events & Gatherings

From our annual conference to virtual 5Ks — come find your people and celebrate the 5p- community.

Flagship Event · 2026

Five P- Society Annual Conference

Three days of family connection, medical presentations, therapy workshops, sibling activities, and the energy of hundreds of families who truly understand your journey.

July 2026
23–26
San Antonio, TX
July 23–26, 2026
4 days
San Antonio, TX
Venue TBA
All Families
All ages welcome
CME Credits
For medical professionals

What to expect

Medical & clinical presentations from leading researchers

Therapy workshops — speech, OT, PT, AAC, behavior

Family connection time and parent roundtables

Sibling-specific programming and activities

Evening social events and celebrations

Resource fair with vendors and service providers

Registration

Early Bird (ends March 31) TBA
Regular Registration TBA
Medical Professionals TBA

Virtual 5K for 5p-

Run, walk, roll, or stroll — participate from anywhere in the world during the entire month of May. Every participant helps raise awareness for 5p- Syndrome and funds our family support programs.

May 13–31, 2026
Fully virtual — participate from anywhere
Any pace, any distance — all abilities welcome
Registrants receive a commemorative t-shirt
Register for the 5K
5K participants

Regional Gatherings

Find Your Regional Coordinator
Jul
11
2026
Regional Event Kentucky / Southeast Region

Louisville Regional Family Gathering

A casual in-person meetup for 5p- families across Kentucky, Tennessee, Indiana, and Ohio. Spend the afternoon connecting with local families, sharing resources, and enjoying time together. Siblings and extended family always welcome.

Saturday, July 11, 2026
Louisville, Kentucky
11:00 AM – 3:00 PM CDT
Lunch provided
RSVP Details
Aug
16
2026
Regional Event Western Canada Region

Western Canada Regional Gathering

Join families from British Columbia, Alberta, Saskatchewan, and Manitoba for a late-summer afternoon of connection. Enjoy a relaxed outdoor setting, share your stories, and meet fellow 5p- families from across the region. Bilingual programming available.

Saturday, August 16, 2026
Calgary, Alberta
12:00 PM – 4:00 PM MDT
EN / FR available
RSVP Details

Past Conferences

2024

Annual Conference

Location TBA · Sold out

2023

Annual Conference

Location TBA · Over 300 attendees

2022

Annual Conference

In-person gathering · Families from 30+ states

40 Years of Gathering

Where We've Come Together

From our first conference in Chicago in 1986 to today — every pin represents a year families found each other.

Past conference
Upcoming conference

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