A community-sourced directory of medical providers, therapists, and specialists recommended by families in the Five P- Society network.
Board-certified developmental-behavioral pediatrician with 14 years of experience. Sees patients with 5p-, autism, Down syndrome, and other chromosomal conditions. Telehealth available for established patients nationwide. Accepts most major insurance plans.
AAC specialist with specific experience implementing LAMP and core vocabulary approaches for minimally verbal children, including several current patients with 5p-. ASHA certified. Expertise in feeding therapy and oral motor function. Waitlist typically 3–4 months.
Clinical geneticist and genetic counselor team at Boston Children's. Has evaluated more than 30 patients with 5p- over his career and contributes to the Johns Hopkins research registry. Offers telehealth genetic counseling for families with an established diagnosis. ABMG board certified.
Sensory integration specialist with additional training in DIR/Floortime. Works extensively with children who have low muscle tone, tactile sensitivities, and self-regulation challenges. Current patient caseload includes three children with 5p-. SIPT certified. Home visits available within Maricopa County.
Board Certified Behavior Analyst with a naturalistic, communication-first approach. Specializes in functional behavior assessments for nonverbal children and developing behavior support plans that prioritize skill-building over suppression. Telehealth supervision for families with existing ABA providers available nationally.
Pediatric physical therapist with NDT (Neurodevelopmental Treatment) certification. Focuses on gait training, balance, and functional mobility. Experience with hypotonia and low muscle tone in chromosomal conditions. Works closely with OT and SLP to coordinate care. Aquatic therapy available at partner facility.
Developmental pediatrician at the UCLA Neurodevelopmental Disorders Program. Co-investigator on the Boston Children's AAC intervention study. Particular expertise in transitioning children from early intervention to school-based services. Bilingual (English/Mandarin). Telehealth available for patients in CA and WA.
Part of Gillette Children's complex communication needs team. Specializes in high-tech and low-tech AAC, partner-assisted scanning, and eye-gaze technology for children with motor limitations. Runs a monthly AAC parent training group. Has worked with 5p- patients across a wide age range including several adults.
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If you are a clinician, therapist, or specialist who works with individuals with 5p- Syndrome, we welcome your submission. All listings are reviewed by our team before publishing.
Our regional coordinators have deep knowledge of local providers and can often suggest specialists who are not yet listed in our directory. Don't give up — the right provider is out there.